Out of Patients with Matthew Zachary
Out of Patients with Matthew Zachary
Matthew Zachary is the healthcare policy love child of Jon Stewart, Howard Stern, Thomas Paine, Ralph Nader, and Jerry Seinfeld. He has 19 years of receipts to prove it. Editorially independent. Answerable to no one. What started as The Stupid Cancer Show in 2007 became Out of Patients. The first online health podcast in America, predating the medium itself. Zachary survived brain cancer at 21, built the young adult cancer movement from scratch, and spent two decades channeling patient rage into something the system never saw coming. Now he is marching into Washington. Out of Patients goes where the comfortable shows will not. Politics. Healthcare policy. Economics. Institutional accountability. Consumer protection. The forces shaping what 330 million Americans can access, afford, and survive. Battle-scarred patients. Exhausted caregivers. Rare insiders brave enough to name what is killing us. And the occasional elected official about to find out what an organized patient constituency actually looks like. This is the show that started the conversation America is still not ready to finish.
July 5, 2022

Life Image: Children with Rare Disease

Life Image: Children with Rare Disease

Today on the show, I welcome Karen Haberberg, a New York-based photographer and the author of several books, one of which is called An Ordinary Day: Kids with Rare Genetic Conditions. Karen's father was himself a photographer who taught her how to shoot when she was in middle school. Like father, like daughter, she was quickly drawn to the art of storytelling through the camera lens and found her voice in capturing the humanity within children of rare disease. Our conversation took us in many directions, not the least of which included the careful craftsmanship and interpersonal disciple it requires to embrace these children as if they were her own to represent humanity and dignity rather than pity. Karen's images have been showcased in The Wall Street Journal, The New York Times, Huffington Post, Good Morning America, New York 1, and others. Lastly, as fellow Gen-X'ers, we channel the love/hate relationship we had with Fotomat back in the 1990s and the over/under of running out of flashcubes in the middle of a night shoot. For more information about Karen, visit https://www.karenhaberberg.com.

See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Today on the show, I welcome Karen Haberberg, a New York-based photographer and the author of several books, one of which is called An Ordinary Day: Kids with Rare Genetic Conditions. Karen's father was himself a photographer who taught her how to shoot when she was in middle school. Like father, like daughter, she was quickly drawn to the art of storytelling through the camera lens and found her voice in capturing the humanity within children of rare disease. Our conversation took us in many directions, not the least of which included the careful craftsmanship and interpersonal disciple it requires to embrace these children as if they were her own to represent humanity and dignity rather than pity. Karen's images have been showcased in The Wall Street Journal, The New York Times, Huffington Post, Good Morning America, New York 1, and others. Lastly, as fellow Gen-X'ers, we channel the love/hate relationship we had with Fotomat back in the 1990s and the over/under of running out of flashcubes in the middle of a night shoot. For more information about Karen, visit https://www.karenhaberberg.com.

See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.