Episodes

Nov. 24, 2022

[BONUS] The Gratitude Show with Koby and Hannah

While America has a complicated history worth acknowledging, Thanksgiving, at least for my family and me, is a holiday dedicated to gratitude and tolerance. On today's special bonus minisode, I'm joined once again by my miracle twins, Koby and Hannah, to talk about what we are thankful for this year, especially through the lens of what's going on inside the minds of 12-year 7th graders in NYC these days. Thank you so much to my loyal listeners for tuning in each week and supporting our shared mission. Enjoy the show, and Happy Thanksgiving. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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Nov. 22, 2022

Musical Theater Nerd Patient Advocates Unite: Jennifer "Jay" Palumbo

On today's quirky show, I welcome Jen Palumbo, an epic human Energizer Bunny who takes a licking and keeps on ticking. Jen is a freelance writer, Forbes contributor, and women's health advocate, specifically for reproductive rights. In a spirited coincidence, it turns out we both went to the same college at the same time, were both Theater people, and have dozens of friends in common. We are ships in the night for sure. As fellow parents of IVF children, we bonded over the current state of the state. And as fellow Binghamton graduates, we bonded over Wegmans, being Theater nerds, and 1990s dorm life in the southern tier. Jen is a true Long Island: loud and proud. Let the hilarity, dark humor, and GenX Therapy begin. Enjoy the show. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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Nov. 17, 2022

Introducing the "Before We Die" Podcast from OffScrip Health

Today I am joined by Ariel Nachmann and Joey Brenneman, co-producers from the offscrip network and also the hype team behind the all-new Before We Die podcast from OffScrip Health! Although the title sounds a bit macabre, this show is all about saving lives with emerging technology. We’re here to fuel your anger and get you riled up to demand access to new medical technologies that are often faster, better, and cheaper than the standard of care. The process of getting these products to patients must be accelerated Before We Die! This “clip show” gives you a peek into this full season and introduces you to the  Before We  Die creators and panel of experts, Sandra Miller, John MacMahon, and Craig Ullman.  Subscribe to OffScrip Health's Before We Die on Apple Podcasts, Spotify, or wherever you enjoy listening to your podcasts. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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Nov. 15, 2022

[BONUS] SportsCancer Recap: AVBCC 2022 Conference

In today's bonus episode of Out of Patients, I welcome back to the studio returning champion Gail Zahtz. We recently attended a super wonky, jargon-filled trade show, and we're here to break it all down for you—the listener— in ordinary human lay speak. The Association for Value-Based Cancer Care (AVBCC) is a behind-the-scenes organization deep in the subbasement of healthcare. Their purpose is to ensure that the "right patients" get prescribed the "right medicine" at the "right time," hopefully with minimal drama, while avoiding anyone going bankrupt. That's the gist. So strap in as we attempt to de-wonkify a bunch of acronyms in corporate bingo land, and maybe—we hope— you learn something along the way that can make your healthcare experiences suck a little less. Enjoy the show. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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Nov. 10, 2022

The Cancer Mavericks Series Finale: If History Teaches Us Anything

Welcome to the series finale of The Cancer Mavericks. In this final episode, we reflect on the first seven episodes through the lens of history and progress with a series of insightful conversations featuring some of healthcare's most influential and visionary voices across the past four decades. If history is a teacher, we have learned that change can happen, albeit slowly. But it is only when the people stand up, organize and activate their voices demanding change, that the culture will shift, the institutions will pivot, and the very system itself will be forced by the will of the citizens to bend towards the arc of justice. Thank you for joining us for this groundbreaking series. If you like this series, please leave a review and a rating on your favorite podcast app. To learn more about The Cancer Mavericks, visit https://CancerMavericks.com. To learn more about OffScrip Health, visit https://OffScrip.com. FEATURED VOICES Gil Bashe Chair Global Health and Purpose, FINN P…
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Nov. 8, 2022

How to be Sick: The Just Diagnosed Guides

Today, I proudly welcome my cancer survivor comrade at arms, Jen Singer. Jen's got the trifecta of "shit happens," having survived cancer, heart failure, and "COVID Classic" back in February of 2020 when no one had any idea what the hell was going on. She is the creator of "How To Be Sick," patient-friendly ebooks called "The Just Diagnosed Guides" to provide the newly diagnosed with the information they really need to know now. Because who actually knows what they need to know when they never knew they needed to know it? She's an outspoken professional despiser of Dr. Google, which I think we could all agree is the worst place to go when bad things happen. And as fellow cancer survivors, we bonded over how the hell we're both still alive all these years later through humor, empathy, and virtual cocktails. Enjoy the show. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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Nov. 3, 2022

White House Cancer Moonshot Coordinator Danielle Carnival, Ph.D.

I was privileged to welcome Dr. Danielle Carnival, White House Cancer Moonshot Coordinator, to the studio. We talked about the President's priorities, principal directives, and legislative strategies, as well as what Americans can look forward to in the coming months and years through this ambitious and transformational National initiative. Carnival, who has a Ph.D. in neuroscience, served as chief of staff and senior policy director for the 2016-2017 White House Cancer Moonshot Task Force. Subsequently, she served as vice president of the Biden Cancer Initiative. She's also a friend of Wegman's. So there's that, too. To learn more about the Whitehouse Cancer Moonshot initiative, visit https://www.whitehouse.gov/cancermoonshot. Enjoy the show. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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Nov. 1, 2022

From Pinterest to Glioblastoma Research

Today on the show, I welcome Vikram Bhaskaran, and Dr. Rohan Ramakrishna (Chief of Neurological Surgery at New York Presbyterian) live in-studio to talk about Roon, their intriguing new cancer navigation platform for patients and caregivers. Roon is personal to Vikram as his whole career shifted from Pinterest executive to caring for his Father when he was diagnosed with ALS. Roon claims to be "the most supportive place online for people navigating complex health conditions, starting with Glioblastoma." so we power-test how that holds up against unmet patient needs. Rohan is only the second neurosurgeon I've had on the show, so, as a brain cancer survivor, I naturally asked him all sorts of pointed questions like, "What's it like to touch someone's brain?" These guys are the real deal with core compassion for empathy in medicine and helping patients in need access what they never knew they needed. Enjoy the show. See Privacy Policy at https://art19.com/privacy and California Privacy …
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Oct. 27, 2022

[THROWBACK] Pay the Patients: It's Time to Compen$ate Patients for Their Experience

Today we’re dropping a very special throwback to an early episode of Out of Patients. Too often, patients are blatantly taken advantage of by Industry who profit off of our stories and our experience dealing with a disease we didn't ask to have. If our experience is so critical to Industry's bottom line, there should exist fundamental compensation standards under which which they operate. Period. Matthew Zachary welcomes OffScrip Media Senior Producers Andrew MacDowell (Co-Founder and COO,) Jen Horonjeff (Founder/CEO of Savvy Coop) and Sandy Vassos (Nonprofit Executive and OffScrip Media Advisor for Strategic Relationships) See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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Oct. 25, 2022

Getting Endlessly Misdiagnosed Is Fabulous!

The amazing Victoria Fenton joins me today from across the pond in England to share one of the greatest British accents I've ever welcomed to the program. Well, that and the fabulous feeling when you know something is wrong with your body, and no medical professional will take you seriously while regurgitating back to you that it's all in your head. Victoria was misdiagnosed for over a decade as a teenager while suffering from all sorts of life-threatening symptoms. Consistently greeted with "You have mental health issues. Get over it." she was finally diagnosed with Ehlers-Danlos Syndrome (EDS), a group of hereditary disorders of connective tissue. She realized that when you have no control over something, it helps you take control of it. She chose to immerse herself in natural language processing and cognitive behavioral therapy. She soon realized the obvious: Our minds and our bodies can control the way we interact with the universe around us. Not heal. Not sure. But help manage th…
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Oct. 20, 2022

[THROWBACK] The Heart of Healthcare with Mark Cuban

Today we’re dropping a very special throwback to a bonus episode of Out of Patients. Out of Patients is just one of many shows on the OffScrip Health network – and we want to make sure all of our excellent podcasts are on your radar! The Heart of Healthcare is a show that explores the social determinants of health, including our food system, housing, climate change, and more. It’s hosted by long-time healthcare advocate Halle Tecco. Halle recently had the opportunity to welcome Mark Cuban to the show.  The two hit it off and talked about the soaring costs of prescription drugs and his new venture – Mark Cuban Cost Plus Drug Company.  See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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Oct. 18, 2022

Why Clinical Trial Enrollment Sucks

My guest today is Dr. Selin Kurnaz, Founder and CEO of Massive Bio, a company that is as impressive as it sounds. Its mission is to solve one of the single most critical scathing holes in healthcare: the "last mile" of clinical trial enrollment. What does that mean? You'll find out during our conversation, and rightfully so; the explanation will further deepen your pre-existing disdain for "the system." Selin is a no-BS serial entrepreneur who defines herself as a "non-status-quo businesswoman." whose sole purpose is to ensure every cancer patient gets access to a clinical trial; because only 20% of all patients that qualify for a clinical trial never actually fully enroll in that trial. And that is not OK. All that and more on the show today, let's get started. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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Oct. 13, 2022

HEALTH CARELESS // Stressbop, Snakes, and SCOTUS

Mat The W and Elura Thou Nanos talk about celebrity musician forays into mental health advocacy, doctors doing really bad things and recent SCOTUS arguments on California's pork regulations. Oink! See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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Oct. 11, 2022

From Paperboy to Rare Disease Advocate

On the show today, Matthew is joined live in-studio by Larry Reines, a young adult rare disease advocate and Founding Member of the Aaron Myer Consulting Group. From humble beginnings as a 12-year-old paperboy learning the ropes of supply chain, customer service, and accounting, his life took a nasty turn when he was diagnosed with an extremely rare condition known as Progressive Myeloproliferative Disorder. 27 years later, he's still here and is thriving as USA Swimming certified coach, and master of his own domain as a business leader, philanthropist and patient advocate for young adults and the rare disease community. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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Oct. 6, 2022

HEALTH CARELESS // Monkeypox Rates, PrEP Accessibility and the GOP’s New Take on the ACA

Elura and Matthew are joined by PrEP advocate and Tub Talks host Damon Jacobs, LMFT to give a monkeypox update and discuss two stories relating to the Affordable Care Act. Damon also tells his own story of trying to access the monkeypox vaccine in New York earlier this summer. Here are the three extra headlines you don't want to miss: Your dog's nose knows if you’re feeling stressed out via NBC Record numbers of nurses are quitting the NHS in England, figures show via BBC Biden Vaccine Mandate for Health Workers Survives Supreme Court Appeal via Bloomberg See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Oct. 5, 2022

[BONUS] Introducing the Beyond the Paper Gown Podcast Hosted by Dr. Mitzi Krockover

In today's special bonus episode, Matthew welcomes the venerable Dr. Mitzi Krockover to the show. Mitzy is a board-certified internist, former VP of Women's health at Humana, and the Founding Medical Director of the Iris Cantor-UCLA Women's Health Center. What makes this episode even more remarkable is that Mitzi's acclaimed podcast, Beyond The Paper Gown, has joined the OffScrip Health podcast network as one of our flagship programs. Beyond The Paper Gown—available wherever you listen to your podcasts—is committed to engaging, educating, and inspiring a community of women to achieve optimal health and well-being and to effect meaningful change on the systems that impact women's health. Her guests have included some of the most influential and inspirational entrepreneurs leaning into today's age of digital health, diagnostics technology, and appreciation for how social media has transformed how patients engage with—and trust—medicine. Today's conversation focuses on a recent episode o…
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Oct. 4, 2022

How To Be Your Own Medical Experiment

Dr. David Fajgenbaum is many things, but for the purposes of this episode, let's just say he went from an all-star college athlete to being read his last rites in a matter of weeks. In addition to his tenure as an Assistant Professor of Medicine at UPenn's Perelman School of Medicine, David is the author of Chasing My Cure: A Doctor's Race To Turn Hope Into Action. Why? Well, because he experimented on himself to discover the very medicine that would save his life and others. Born of his condition, David then co-founded the Castleman Disease Collaborative Network, a global initiative dedicated to accelerating research and treatment for Castleman disease (CD) to improve survival for all patients with CD. He's young. He's smart. He's funny. And he's someone you're definitely going to want to be friends with. Enjoy the show. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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Sept. 29, 2022

HEALTH CARELESS // Birth Control Upticks, CDC Tomfoolery and One Hospital's Fuckery

Matthew Zachary and Elura Nanos discuss an uptick in longterm birth control use by teens, how the CDC is subtly changing its COVID messaging in plain sight, and how one hospital in Virginia deserves lots of attention for the fuckery it's caused its patients. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Sept. 28, 2022

[BONUS] Dear Cancer: What Is Biomarker Testing?

Welcome to "Dear Cancer," a takeover episode of Out of Patients with special guest hosts Dr. Mark Lewis, an oncologist from Intermountain Medical Center, and Stephanie Elsea, a volunteer patient advocate from The Lustgarten Foundation. Together with Matthew Zachary, Mark and Stephanie break down the latest cancer research medical jargon into human terms, especially with the help of another special guest, Matt's daughter, Hannah. With grace, humor, and passion, the three share personal stories that connect them deeply to this cause. They wish only to help patients strike that balancing act between hope and hope by banishing pessimism and embracing reality about their prognoses. Throughout the episode, the team covers everything from understanding different types of tumors, what biomarkers are (and their importance), and clinical trials can sound less, um.. "clinical." They also discuss the latest findings and some extremely positive results from the Crestone Research Study. See if …
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Sept. 27, 2022

From Chinese Linguist to Chief Medical Officer

My guest today is Dr. Richard Parker, Chief Medical Officer at Arcadia, an exciting venture focused on using "big data" to ensure the right information about care is delivered to the right patient when needed. What a concept! For the math nerds out there, they harness millions of data points—like your diagnosis, medications, zip code, etc.—to create a sort of flowchart and navigation tool. Rich tells me it's not Skynet, and we are not at the dawn of a robot apocalypse. What's even more interesting is how Rich got started in his career in Chinese linguistics and how that enabled him to his role as Chief Medical Officer for Beth Israel Deaconess in Massachusetts. Oh, and we rifle through the 1980s and compare notes on how dangerous playgrounds used to be. Enjoy the show. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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Sept. 22, 2022

HEALTH CARELESS // Strikes, Butts, and Bankruptcy

Elura Nanos and Matthew Zachary discuss Ryan Reynolds and his colonoscopy campaign, how J&J is dodging cancer patients through the Texas-two-step and why healthcare workers are striking around the country. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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Sept. 20, 2022

The Patient Orator, with Kistein Monkhouse, MPA

A recent study showed that it takes a doctor 11 seconds to interrupt a patient. My guest today is Kistein Monkhouse, a public health expert and patient advocate advocating for health equity. She is the CEO and founder of Patient Orator, a HIPAA-compliant digital health mobile app that improves how people talk to doctors and how doctors talk to people. Kistein speaks softly but carries a big stick and, with her immigrant backstory, demonstrates the power of perseverance, empathy, and entrepreneurship to make a dent in the universe for the patient community. Please enjoy this extraordinarily authentic conversation. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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Sept. 15, 2022

HEALTH CARELESS // Goodbye, Vax On!

What do cancer survivors, free speech and license plates have in common? A legal case happening in Delaware! Join Elura Nanos and Matthew Zachary as they dissect the latest healthcare news including: what’s happening with the CDC reorg, monkeypox and a story on a breast cancer survivor’s legal battle to make the Delaware DMV allow her “FCANCER” license plate on the road. Welcome to the first episode of Health Careless, formerly known as Vax On. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
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Sept. 13, 2022

Detecting “Pre-cancer” Is the New Prevention with Dr. Lishan Aklog

Fran Drescher once said, "Stage 1 is the cure." Not any longer. Medical technology and genetics have come so far these days that it's now possible never to get cancer in the first place. At least some cancers that is. No, we're not talking about "prevention" in the traditional sense. My in-studio guest Dr. Lishan Aklog and I talk about "pre-cancer," a condition where cells in your body that are at risk of becoming cancer can now be detected and treated before any actual malignancy begins. How unbelievably insane is that? Lishan is an acclaimed thoracic surgeon and entrepreneur who once fled political violence in Ethiopia as a child and now helms PAVMed, a truly next-gen enterprise bringing to market these miraculous tests that can detect pre-cancer. Deservedly so, Lishan was recently named a Top 50 Healthcare/Technology CEO of 2021 and speaks to such essential issues as empathy in medicine, fighting with the FDA, and boiling down complex medical jargon so the average human can underst…