Episodes

104
April 8, 2021

VAX ON: Vaxcations, Passport Legality, Human Error, and COVID Test Nudging

In this episode of VAX ON, Matthew Zachary and Elura Nanos relish in the wake of their own personal family "vaxcations," discuss a major "oopsie" in vaccine prodiction (ahem: Emergent BioSolutions), proclaim theundisputed legality of vaccine passports, and share some guidance on helping the effort for mass testingSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
103
April 6, 2021

Hurts So Good: Stacy Hurt Takes No Prisoners

On the show today —> Stacy Hurt , stage IV colon cancer survivor healthcare advocate, health/tech influencer, and caregiver to intellectually and developmentally disabled son Emmett. If you look up "passionate and outspoken "in the dictionary, Stacy's face will be front and center. She is the epitome of the "take no prisoners" voice of the people raging every day for empathy in medicine, caregiver support, invisible disability awareness, patient experience, and more. Prepare to laugh. Prepare to...
102
April 1, 2021

VAX ON: Misinformation, Tourist Enticements, and ‘Impending Doom’

In this episode of VAX ON, Matthew Zachary and Karen Salt Marinelli (sitting in for Elura Nanos) discuss side effects with second vaccine doses, false claims of vaccine deaths, and CDC Director Dr. Rochelle P. Walensky’s warning of ‘impending doom.’ They also discuss how many countries around the globe are attracting tourists with very generous travel packages and discounts.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
March 31, 2021

[BONUS] "Jen Horonjeff is Noncompliant" Patient Data Is Valuable? Huh?

Today on "Noncompliant," Jennifer and Matthew discuss what happens when a bunch of hospitals realizes that patient data is valuable. Obviously, they form a company to band together and sell it! Sure there may be an upside for society and the hospitals that stand to profit from it, but on the individual patient level, it not only leaves them out of the upside but may strip them of their agency and choice. Listen in as we unpack this developing story and muse on the latest with the vaccine rollout.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
101
March 30, 2021

From Shadows to Life: A Biography of the Cancer Survivorship Movement

On the show today, Judith L. Pearson, triple-negative breast cancer survivor, patent advocate, and author of the new book, From Shadows to Life: A Biography of the Cancer Survivorship Movement. If you're a long-time listener, you already know that if I had to fanboy around only one cancer advocacy organization, it would obviously be Stupid Cancer BUT, if one more slot opened up, it would be the National Coalition for Cancer Survivorship or NCCS as it is called because acronyms are our friends. This book is a labor of love that digs into the past 50 years of cancer advocacy and blends medical history with a group biography of average citizens who created a social movement that continues to this day to help millions of people when they hear the words. "You have cancer."See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
100
March 25, 2021

VAX ON: Unvaxed Kids, Cruising Through COVID, and NO SCREAMING!

On this week's episode of VAX ON, Elura and Matthew discuss the CDC’s updated COVID-19 guidelines for minors, and some unexpected state guidelines for California’s theme parks. They also discuss concerns about digital vaccine passports and the re-opening of major cruise lines. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
99
March 23, 2021

Thanks, Pandemic! (The Kids May Not Be Alright)

On the show today “Health/Technology Researcher” — and returning champion — Susannah Fox joins me along with Vicky Rideout, a researcher on children and media to discuss the findings from their brand new study: Coping with COVID-19: How Young People Use Digital Media to Manage Their Mental Health. What is absolutely fascinating about all of this is that there are actually two sets of data, one concluded in 2018 and then, with the pandemic, they repeated the same study and compared the differences. Spoiler – the results were shocking and yet… not shocking as you can imagine. Thank you to the generous sponsors who made this study possible: Hopelab, California Health Care Foundation, and Common Sense Media.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
98
March 18, 2021

VAX ON: Reprogramming Our Minds, Unreported COVID-19 Deaths, and Yo-Yo Ma

In this episode of VAX ON, Matthew Zachary and Elura Nanos talk about how living through a pandemic re-wires your memory. They also discuss unreported COVID-19 deaths and Yo-Yo Ma’s surprise cello concert at a vaccination site in Massachusetts.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
March 17, 2021

[BONUS] "Jen Horonjeff is Noncompliant" I Want My Vaccine, Dammit!

The vaccine is yet another classic case of patients who want to be compliant, but can’t because the system prevents it, or at least makes it extremely complicated and confusing. In this week’s episode, Jen shares her frustrations trying to get a vaccine and her hopes that her laundry list of diseases will qualify her eventually.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
97
March 16, 2021

Dr. Kellie Stecher: Proud Band Geek and COVID-19 Burnout Hacker

Dr. Kellie Stecher is OB/GYN at M Health Fairview Center for Women and the Co-Founder/President at Patient Care Heroes, a mental health service and community support platform for front-line medical professionals. A proud band geek whose favorite book is To Kill A Mockingbird, Kellie lives the Hippocratic oath every day while juggling a career, a family, two kids, and the impact of COVID. Our conversation focuses on reproductive rights, physician burnout lifehacks, healthcare access in rural communities, empathy in med school, and oh so much more.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
96
March 11, 2021

VAX ON: One-Year Quarantineaversary, Child Marriages, and How Sex-Related Businesses Got the COVID-19 Shaft

In this episode of VAX ON, Matthew Zachary and Elura Nanos reminisce during the 1 year anniversary of the coronavirus pandemic. They also discuss the impacts of COVID-19 on child marriages, and how sex-related businesses have been excluded from COVID-19 financial aid.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
95
March 9, 2021

Scrambled Eggs: An Infertility Advocacy Rantfest with Alice Crisci

Back on the show today in this special bonus episode of Out of Patients, a little segment we're calling "Scrambled Eggs." with returning champion guest Alice Crisci, cancer survivor, fertility activist, and Founder and CEO of MedAnswers. What triggered this conversation was a recent article in Ms. Magazine by cancer survivor Madison Chapman opening up a wormhole about all the stupidity and ridiculousness surrounding fertility preservation and fertility rights issues; unnecessary obstacles that somehow still lie in the road nearly 45 years later when the science first began. Note that if you are interested in fertility advocacy and what you are about to listen to pisses you off just enough, our partnership with the nonprofit RESOLVE may be just the thing you're looking for to take action, join the movement, and give back.  Let's jump down the rabbit hole.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
March 5, 2021

The #BCSM Podcast, EP3: Ending Health Disparities

In this series finale crossover episode, we meet Maimah Karmo, President, and CEO of the Tigerlily Foundation, and learn about her journey to end disparities for young breast cancer patients of color. If you like this series, be sure to subscribe, leave a rating, a review, share on social media, and please tell your community to check it out. Your voice matters. Tell us your story in your voice and give us your feedback about the series by leaving us a good old-fashioned voicemail at (855) AUDIO66 (283-4666.) And don’t forget to join the #BCSM weekly tweet chat live every Monday at 9pm/ET on Twitter.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
94
March 4, 2021

VAX ON: Matt & Elura Got Vaxxed, COVID Passports, and Marching Band Pods

In this episode of VAXON, Matthew Zachary and Elura Nanos debrief after receiving their second COVID-19 vaccine. They also discuss the CDC’s updated protocol for those who are vaccinated, how airlines are planning to help vaccinated passengers cross borders with ease, and how one intrepid high school marching band in Washington State came up with a clever way to keep their rehearsals on track.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
March 3, 2021

The #BCSM Podcast, EP2: Community of Communities

In this crossover episode, we meet breast cancer advocates and users of #BCSM, Liza Bernstein, Anne Marie Mercurio, Christine Hodgdon, and Julia Maues. We find out how they got involved in #BCSM and how they utilized the hashtag to further their advocacy. If you like this series, be sure to subscribe, leave a rating, a review, share on social media, and please tell your community to check it out. Your voice matters. Tell us your story in your voice and give us your feedback about the series by leaving us a good old-fashioned voicemail at (855) AUDIO66, that’s 855-AUDIO66 (283-4666.) And don’t forget to join the #BCSM weekly tweet chat live every Monday at 9pm/ET on Twitter.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
93
March 2, 2021

The Art of Survivorship: David M. Bailey and Dr. Adam Dachman

This episode of Out of Patients features a new segment called The Art of Survivorship (AOS). Today, Matthew takes a trip down memory lane to highlight and recognize two fellow musicians affected by cancer. Prepare to be inspired by Dr. Adam Dachman and the late David M. Bailey in this special episode.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
March 1, 2021

The #BCSM Podcast, EP1: Origin Story

Welcome back to Out of Patients! For months here at OffScrip Media, we’ve been working with breast cancer patient advocate Alicia Staley on a narrative series about how breast cancer patients dared to be the change they wished to see, saw an opportunity to fill a need, and created the Breast Cancer Social Media Community. Now, OffScrip Media is proud to present The #BCSM Podcast. What began in 2011 as a conversation on Twitter has evolved into a global network of patients, caregivers, clinicians, and researchers dedicated to empowering those affected by breast cancer.The next three episodes of Out Of Patients will be crossover episodes from the BCSM podcast. You can listen on their feed as well by searching “Hashtag BCSM podcast”See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
92
Feb. 25, 2021

VAX ON: Snowpocalypse, Fake Grannies, and Opening Schools Someday?

In this first-ever episode of VAXON, Matthew Zachary and Elura Nanos discuss a very inconvenient snowpocalypse, fake grandmas, Biden’s goal to open K-8 schools, and more!See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
91
Feb. 23, 2021

Don't Start A Charity: An Cautionary Origin Story

Elizabeth Woolfe is a veteran nonprofit consultant and unmatched sherpa guide in the business, management, and organizational culture of charity. Full disclosure: Liz also one of my best friends in the world and saved my ass more than a few times serving as strategic counsel to Stupid Cancer during the latter half of my tenure. As of this recording, we pay tribute to the late Cloris Leachman by preparing you for today's "Roll, Roll, Roll in Ze Hay." See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
90
Feb. 18, 2021

VAX ON: A New Weekly Roundup of Healthcare News Fuckery

Award-winning hosts and patient advocates Matthew Zachary and Elura Nanos react to the great vaccine rollout of 2021. They’ll sort through the week’s healthcare news and related fuckery as America gets its vax on and shows #COVID19 the door.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Feb. 17, 2021

[BONUS] "Jen Horonjeff is Noncompliant" The Clinical Trial Quid-Pro-Quo

On this bonus episode of "Jen Horonjeff is Noncompliant," Jen brings to Matthew Zachary's attention the idea that patients who enroll in clinical trials should more than benefit from the therapeutic aspects of treatment. After all, aren't they essentially helping a private sector on their go-to-market drug approval and commercialization strategy? After all, if you're helping a business make more money, shouldn't you be entitled to some of that sweet, sweet cheddar yourself? Say, perhaps, some equity stake in their growth? Food for thought because inquiring minds want to know.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
89
Feb. 16, 2021

Dr. Mark Lewis Is the Twitter We're Looking For

Dr. Mark Lewis is the Director of GI Oncology at Intermountain Healthcare in Salt Lake City. He is also a young adult survivor of pancreatic cancer, a thought leader on #MEDTwitter, and one of the funniest and down-to-earth physicians you’re likely to meet. Motivated by losing his father to cancer, coupled with a genetic predisposition for empathy, his story of “when the doctor gets cancer” preaches the virtues of data and truth. Prepare to find out what happens when Sid the Science Kid meets Dexter’s Lab meets Pickle Rick. Follow Mark on Twitter at @DrMarkLewisSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
88
Feb. 11, 2021

Biomarkers: Where Are All the Patents At?

On the show today, Bio Entrepreneur Marty Keiser, Founder of IV BioHoldings, LiquidLung, HepGene, and Mammogen. What is a biomarker? Hint - it's not inside a box of Crayola. Biomarkers are aspects of our genes that do so much more than determine our height, eye color, and predisposition to cancer. Diagnostics today can be used to detect earlier, diagnose easier, and treat better. That's what Marty and his entrepreneurial ventures are all about. It's not just making cancer suck less; it's using pioneering diagnostics to make radiation and chemo not just suck less, but perhaps not even be needed at all. Enjoy the show.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
87
Feb. 9, 2021

The Alliance for Health Policy: Don't Mess With Us

On the show today: President and CEO of the Alliance for Health Policy, Sarah Dash. AHP —or “The Alliance” — is a nonpartisan nonprofit dedicated to informing policymakers on critical health policy issues. I know it sounds wonky but it’s actually awesome because they are the good kind of “how the sausage is made.” After all, industry puts too much burden on patients to navigate the healthcare system. Listen in as we geek out over covalent bonds, how 20-something staffers run the country and the possibility of “un-geeking” health policy for the layperson.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.