Episodes

Lilly Stairs is the Founder of Patient Authentic, which is exactly as it sounds: a bully pulpit that takes (1) the chocolate that is the health tech sector and (2) the peanut butter that are the nonprofits, and makes the Reeses Peanut Butter cup of social change that puts the patient at the forefront of every conversation. Advocates are not born. They are made, often of their own condition. Lilly is no exception having been diagnosed with psoriasis at 7, and then both psoriatic arthritis and Crohn's disease at 19. She's worked for Pharma, Bio, Patient Advocate Groups, and Nonprofit Organizations. She wears many hats. In addition to all those things, we spent time exploring the "donut hole of access" between the health-tech and nonprofit sectors—Twas an epic discussion. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

On today's show, my good friend, long-time partner-in-crime advocate, and Princess Leia Jedi Master of Health Tech, Susannah Fox, who I consider to be one of the most insightful, introspective and influential unicorn, renaissance human beings around. Susannah was the Chief Technology Officer for the U.S. Department of Health and Human Services and is currently on the boards of Cambia and Hive, and provides research and advice about navigating the intersection of health and technology at her consultancy, Internet Geologist. Her passion has been—and quite possibly forever shall be—the fundamental power of peer-to-peer health. You know, that whole "You're Not Alone" thing? "Connecting with people with shared and similar experiences where there's no judgment or stigma?" "Tribalism done right for the purpose of lifehacking your way through acute illness and chronic conditions?" That is Susannah's passion. See if you can spot the gestalt moment where I nearly lost my mind (in the best sense…

On today's show, we welcome one of the most influential human beings of my career: Dan Pallotta, champion of charity and the entire nonprofit business sector. Dan's take on how we as a culture think about charity the wrong way planted a bedrock philosophy in my head for how I was going to grow and lead Stupid Cancer to scalable success without the pitfalls of donors complaining about "Overhead." "I'll give you money but don't spend it on electricity. Only programs." Dan's much-ballyhooed book "Uncharitable: How Restraints on Nonprofits Undermine Their Potential" has a new, more digestible School House Rock version called "The Everyday Philanthropist" that I encourage every single nonprofit Board member, staff member, and donor to read immediately. My favorite quote from Dan is this: "Human. Kind. Be Both." Dan's Latest Book: The Everyday Philanthropist. Dan's TED Talk: The Way We Talk About Charity is Dead Wrong See Privacy Policy at https://art19.com/privacy and California Privacy N…

Alice Crisci is a cancer survivor, entrepreneur and activist. She founded MedAnswers to speed consumer access to specialty medicine. Her company's first app product, FertilityAnswers, is the only social network for fertility. FertilityAnswers connects users struggling to conceive with multi-disciplinary experts who can answer their anonymous fertility questions. Alice also founded the oncofertility charity, Fertile Action, three weeks into her breast cancer diagnosis at 31-years-old, and is the ecstatic mom of a fertility preservation miracle son and their pet menagerie who sometimes even let her practice daily meditation in peace and quiet. More at http://MedAnswers.com and http://www.fertileaction.org/ See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In 2016, Sara Woods was diagnosed with Clear Cell Sarcoma, a very rare form of Sarcoma, which is in itself a rare form of cancer. Today in 2020, Sara is 17 years old. (Part 2 of 2)

In 2016, Sara Woods was diagnosed with Clear Cell Sarcoma, a very rare form of Sarcoma, which is in itself a rare form of cancer. Today in 2020, Sara is 17 years old.

On today’s show, you’re going to hear from my friend and colleague Bruce Cozadd, Co-founder, Chairman and CEO of Jazz Pharmaceuticals. And NO — this was not a conversation about the glamorous Pharmaceutical Industy and all its unique facets — shall we say — worthy of endless discussion. I wanted to talk with him – as my friend, my peer, fellow Founder and CEO — about leadership during COVID and all the other crazy shit going on. Listen to Matt and Bruce on The Stupid Cancer Show here: https://offsc.rip/mzbcscs See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Dr. Bob Bollinger is the Raj and Kamla Gupta Professor of Infectious Diseases at the Johns Hopkins University (JHU) School of Medicine, and he holds joint appointments in International Health at the Johns Hopkins (JH) Bloomberg School of Public Health, and in Community Public Health at the JH School of Nursing. He is Founding Director of the Center for Clinical Global Health Education (CCGHE), Director of the JHU Fogarty India Program, and Associate Director for Medicine of the JH Center for Global Health. Sebastian (E.) Seiguer, JD, MBA is CEO and co-founder of emocha Mobile Health, a company which uses video technology to secure medication adherence. Fluent in German, Spanish and English. Sebastian holds a JD from Columbia Law School and an MBA from the Carey Business School at Johns Hopkins. Learn more about eMocha Health at https://emocha.com. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Dr. Saralyn Mark, first and foremost, is a Leader of the American Medical Women’s Association (AMWA). She served as the Senior Policy Advisor to the White House Office of Science and Technology during the Obama administration working on the Ebola outbreak in 2014. At the Department of Health and Human Services and NASA, she was the first Senior Medical Advisor to the Office on Women’s Health. She joined Matthew remotely to cut through the clutter, break down some of the COVID-19 mumbo jumbo, and level-set reality a bit while the world is on fire. Check out Dr. Mark’s book Stellar Medicine: A Journey Through the Universe of Women’s Health, available wherever books are sold. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Matthew Lamb, Ph.D. is an Assistant Professor or Epidemiology at Columbia University Medical Center. He focuses on infectious disease prevention, treatment, and scale-up. His research focuses on identifying best practices in public health approaches to HIV prevention, service delivery, and treatment in resource-limited settings.Dr. Lamb focuses on applying causal inference in implementation settings. He teaches courses in the Epidemiology department on introductory epidemiology and biostatistics, applications of epidemiologic research methods, and advanced techniques in epidemiologic methods. Dr. Lamb works in the Strategic Information unit at ICAP-Columbia University. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Andrew and I had the pleasure to welcome in-studio Patrick James Lynch, a true renaissance man of many hats who was born of his condition — for a DOUBLE INTERVIEW. If I were to fully divulge all that is Patrick James Lynch, this intro would be longer than the episode.  So in brief, he is one of world's most influential hemophilia patient leaders in addition to being a filmmaker, actor, producer, media guy, keynote speaker, and Founder/CEO of both Bloodsteeam Media, a rare and chronic disease podcast network and Believe Limited, a unique storytelling agency that creates entertainment to affect change. This man is a frieken specimen. Advocates love him. Activists want to be him. And I unapologetically may have developed little man-crush throughout getting to know him.  This episode is on the longer side of what we usually publish, but, I assure you that if you've got the time, it's worth the listen. And as an added bonus, a recurring theme of Steve Guttenberg — along with mentions o…

Dr. Greg Hammer is pediatric intensive care physician, pediatric anesthesiologist and author of the new book “GAIN Without Pain The Happiness Handbook for Health Care Professionals,” which speaks to the philosophies of mindfulness to reduce or mitigate physician burnout — and if there were ever a time for our "Spidey Senses" to be tingling about physician burnout, it’s right now while the world is burning. GAIN Without Pain on Amazon See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Matthew and Andrew welcome cancer survivors Nina Beaty, Creator, The EmPat Cancer Project, and Katie Brown, Vice President of Support and Survivorship Programs at The LUNGevity Foundation, to opine on the current status of lung cancer in America and around the world. Issues of stigma, the increasing prevalence in young women, new treatment options, and how to navigate the COVID-19 pandemic are just some of the pressing topics we cover in this crucial episode. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Peter MacDowell is the Clinical Director of Rochester Dermatologic Surgery and former Co-Director of Clinical Trials Office at the Wilmot Cancer Institute. If that last name sounds familiar, well that’s because Peter is the brother of Andrew MacDowell, my Co-Founder, and COO here at OffScrip Media. Sibling rivalry be damned — and while we may have reinforced some established biases between upstate and downstate New York — we had a fantastic conversation down the rabbit hole of clinical trial treatment, management, and administration in the 21st century. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

How does one "Schoolhouse Rock" the interesting world of Clinical Trials? On the show, Matthew and his Co-Founder/COO Andrew MacDowell are joined by Medaptive Health’s co-founders Eric Kroll and Jeremy Block to help break down and de-jargon what exactly is going on in the world of trials, patient advocacy, drug approvals — and the ever evolving role of Industry, for better or for worse. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Six music Emmys, two Grammy nominations, four gold records, seven Public Television specials and 8 million records sold. After more than three decades as an international entertainer, John Tesh is a living legend. In his new book, "Relentless: Unleashing a Life of Purpose, Grit, and Faith," Tesh describes how the obstacles that shaped him—including being suspended from college, living homeless for months, and facing a deadly disease—shaped his remarkable life. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this sponsored episode, Matthew sits down with his friends to talk all about the glamorous issue of Xerostomia, otherwise known as "Dry Mouth." This is a problem for millions of Americans, but no one talks about it. Why don’t we talk about it? Maybe it’s because when your mouth is dry, talking is the last thing you want to do. There are way too many causes of dry mouth, such as stress & anxiety, cancer treatment, antihistamines, menopause, alcohol or cannabis, vaping, coffee, and nearly ever...

Too often, patients are blatantly taken advantage of by Industry who profit off of our stories and our experience dealing with a disease we didn't ask to have. If our experience is so critical to Industry's bottom line, there should exist fundamental compensation standards under which which they operate. Period. Matthew Zachary welcomes OffScrip Media Senior Producers Andrew MacDowell (Co-Founder and COO,) Jen Horonjeff (Founder/CEO of Savvy Coop) and Sandy Vassos (Nonprofit Executive and OffSc...

Jean-Luc Neptune, MD MBA, or JL as he is known, is a serial entrepreneur and a digital health pioneer. He’s a licensed physician in New York State, founder of Suntra Modern Recovery, serves as Entrepreneur-In-Residence at the Hospital For Special Surgery here in NYC, and if that’s not enough, the man has an MBA from Wharton. What makes this episode so special, is that JL just recovered from COVID-19. And this is not just a telling of the story of "when the Doctor becomes the patient", but a testimony and a warning, and an education into our modern day reality. JL's LinkedIn Profile See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Craig DeLarge is a Digital Health Strategist and Educator at the Digital Mental Health Project, a project aimed at effectively using digital technology in the mental health field, aka MentalTech, to combat mental illness. His main missions are to improve health and build up leaders. Craig has also worked with companies such as IMS Health (IQVIA), CMI/Compas, J&J, GSK, Novo Nordisk, Merck and Takeda Pharma International (Singapore) to positively impact the health community. Craig teaches & lectur...

Immunotherapy and Policy. How can the FDA evolve to help advance and support novel approaches to medicine? How does the field of immune-driven diagnostics serve as a case in point for the need for evolution in existing regulatory frameworks? Special guests: Meghan Gutierrez Chief Executive Officer Lymphoma Research Foundation Leo David Wang, M.D., Ph.D. Assistant Professor, Department of Immuno-Oncology Assistant Professor, Department of Pediatrics City Of Hope This series is brought to you ad-free by Adaptive Biotechnologies See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Beyond Immunotherapy. The present and future of immune-driven medicine; toward an understanding of the immune system as the driver of solutions for treatment, prevention, and diagnosis of disease; identifying and creating responses to specific immune activation pathways. Special guests: Meghan Gutierrez Chief Executive Officer Lymphoma Research Foundation Leo David Wang, M.D., Ph.D. Assistant Professor, Department of Immuno-Oncology Assistant Professor, Department of Pediatrics City Of Hope This series is brought to you ad-free by Adaptive Biotechnologies See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

A Brief History of Immunotherapy. CAR-T, t-cell augmentation, and immunotherapy in general over the past decade. We will talk about why is this approach so compelling, and what its limitations have been to date. Special guests: Meghan Gutierrez Chief Executive Officer Lymphoma Research Foundation Leo David Wang, M.D., Ph.D. Assistant Professor, Department of Immuno-Oncology Assistant Professor, Department of Pediatrics City Of Hope This series is brought to you ad-free by Adaptive Biotechnologies See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Jen Horonjeff is a chronic illness patient by birth, a PhD by training, and an entrepreneur by necessity. She was named one of Entrepreneur Magazine's 50 Most Daring Entrepreneurs of 2018 for her work as Founder and CEO of Savvy Cooperative, the first patient-owned public benefit co-op. Rooted in science, but driven by creativity and user-centered design, she believes that giving patients ownership in what they help create is not only the right thing to do, it benefits everyone. Her passion is to improve the patient experience, and to provide more patient engagement opportunities to industry that raises all ships. Jen's LinkedIn Page About Savvy Coop See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.