Episodes

Testing Our Patients is a limited discussion series about how the sausage is made when bringing life-saving diagnostic tests and breakthrough medicines to cancer patients in desperate need of hope. In this episode, we welcome Allison Silverman, CEO of Stupid Cancer, and Lizette Figueroa, Senior Director of Education & Support at The Leukemia & Lymphoma Society, to discuss their work as patient advocates to get MRD testing the patients who need most. Diverse schools of thought often collide betwe...

Finding your voice while navigating a cancer diagnosis is not always easy, but self-advocacy can be a game changer. Advocating for education, research, and funding can drastically change outcomes, and often, it is the voices of those who have experienced health disparities first-hand that impact institutional change. Follow the stories of Montessa Lee, Rayanne Lehman, and Maida Mangiameli as they share moments of strength, wisdom, and advocacy from their journeys with Small Cell Lung Cancer. While there is still no cure for SCLC, there are new screenings and treatments and new reasons to be hopeful. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

“Get your affairs in order” was the advice from one ER doctor to Rayanne Lehman upon seeing her chest X-Ray. That was 4 years ago. When Maida Mangiameli received her Small Cell Lung Cancer diagnosis she wanted to live to know her newborn grandchild and that child is now 6 years old. And for patient Montessa Lee, her Small Cell Lung Cancer (SCLC) diagnosis 16 years ago has led her to a lifetime of advocacy work for lung cancer research, funding and education along with a commitment to being a voice for the voiceless. These lung cancer success stories are not only hopeful but through their journeys, these three patients and their caregivers have gathered a wealth of information and insight to share with others. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this series finale, we meet Maimah Karmo, President and CEO of the Tigerlily Foundation, and learn about her journey to end disparities for young breast cancer patients of color. If you like this series, be sure to subscribe, leave a rating a review, share on social media, and please tell your community to check it out. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In this episode, we meet breast cancer advocates and users of #BCSM, Liza Bernstein, Anne Marie Mercurio, Christine Hodgdon, and Julia Maues. We find out how they got involved in #BCSM and how they utilized the hashtag to further their advocacy. If you like this series, be sure to subscribe, leave a rating, a review, share on social media, and please tell your community to check it out See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Breast Cancer Social Media (#BCSM) is an online community dedicated to empowering those affected by breast cancer. #BCSM began in 2011 as a conversation on Twitter and has grown into a world of support, guidance, and reliable information. In this episode, we meet breast cancer survivors and co-moderators of #BCSM, Alicia Staley and Jody Schoger. We also find out how Dr. Deanna Attai got involved in the online patient community. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The fight for equitable healthcare goes to Congress. Plus, we meet the next generation of breast cancer activists.  Relevant Resources:  Leslie’s Week  METAvivor - Political advocacy work   Tigerlily Foundation - Political Advocacy Work Tigerlily Foundation - RAISE See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Because of years of being delayed, dismissed, and denied, metastatic patients have had to become the experts in their own care. With the help of doctors and researchers, these patients are now changing the healthcare system from the inside out.  Relevant Resources: Tigerlily Foundation - Barriers Toolkit Storm Riders Network - Christine’s Database for Clinical Trials The BECOME Project - Stephanie Walker’s Study  Trials of Color - Sharon Riveria-Sanchez’s Org METAvivor - Research - Exciting MBC research made possible by METAvivor grants See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

For decades, only one type of patient has been represented in the breast cancer awareness movement. In this episode, we learn the consequences of this representation gap and meet patients who are flipping the script. Relevant Resources: METAvivor - Health Disparities in MBC  Tigerlily Foundation - Barriers Toolkit Tigerlily Foundation - My Life Shonte Drakeford - My Life, My Legacy   See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Following the 2023 Healthcare Burnout Symposium, returning champion Dr. Gabe Charbonneau (CEO at Medicine Forward) is joined live in the studio with Dr. Todd Otten (COO at Medicine Forward) for a frank and candid conversation about the state of the state as it pertains to their grassroots movement, "Fight Burnout." Primary care is at the epicenter of clinician burnout, and positive change is happening, yet where we are blind is that there is still quite a bit of stigma about burnout. Today's extraordinary human conversation delves deep into the critically understated issues of moral injury, including how Hippocrates-driven providers receive the support and care they need to live their lives while saving lives in the process. Learn more about the Fight Burnout movement at https://www.fightburnout.org. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The Wayback Machine was in full force today when my buddy Darren Petronella dropped by the studio for an IRL nostalgia-driven, GenX-themed episode about aging gracefully and our modern-day "Get Off My Lawn" grievances about life, the universe, and everything. Darren and I first met while undergraduates at SUNY Binghamton, with a common thread being musical theater nerds. His claim to fame, says me, was his epic rendition of "Corner of the Sky" from Pippin, and who knew all these years later, we'd meet up in person, and it would be like we'd not missed a day in over 30 years. Oh yes, and healthcare shenanigans abound. Enjoy the show. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The twins are back for another "very special episode" (no — not the one where Arnold gets molested on Diff'rent Strokes or Alex P. Keaton's friend dies) of Out of Patients to celebrate all the things and talk with their Daddy about what 2024 has in store for them. Like what? Well, their forthcoming 14th Birthdays, 8th Grade Graduation, and the start of their Freshman Year of High School! Plus, we talk gratitude, challenges, what it means to be a teenager in 2023, and a little Gen-X fatherhood pride when we talk about their favorite 1970s and 1980s hit songs. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Knownst to me, but unknownst to others, long before the Award-Winning documentary "The Cancer Mavericks: A History of Survivorship" hit podcast feeds, a pilot episode was storyboarded and produced to test the waters with our newly minted production team, helmed by acclaimed executive producer, Steve Lickteig. If all went to plan, we would proceed with the heavy lifting needed to bring this 320-hour, 8-episode history series to life. Suffice it to say, it indeed went to plan. For this pilot episode, the chosen topic would center around a history of cancer throughout the last century's zeitgeist of mainstream film and television. The storyboarding around this pilot would ultimately lay the groundwork for what would become Episode 6 of the final series, titled "Caner Mavericks Goes To Hollywood." So, who better to join host and narrator Matthew Zachary for this exploit of pop culture-meets-healthcare narrative than his mother, Roz Greenweig? A 30-year veteran educator within the …

Today, Matthew welcomes Dr. Aaron Neinstein, Chief Medical Officer at Notable, which is — jargon alert — a leading automation platform for patient engagement and staff workflows. What does that mean? Well, you'll find out from this underachieving Triple board-certified endocrinologist (yes, triple) who received his degree while on a Ski Lift in Montana. You can't make this stuff up. A spirited Diabetes-focused discussion ensues, tackling everything from patient trust, access to the latest and greatest gizmos and medications, and whether AI will indeed become Skynet and kill us all. Enjoy the show. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Once again, the SUNY Binghamton alumni network bestows upon us an incredible guest more than worthy of the hot seat. Dr. Adam Harris is a self-proclaimed "reluctant medical practitioner" who accidentally found himself proficient in all the right classes only to realize, "Why not?" Now serving as Clinical Assistant Professor at the Department of Medicine at NYU Grossman School of Medicine and Senior Director of Strategy and Operations at Oscar Health, he's become somewhat of a unicorn with perspectives from all sides of healthcare. Beyond all things SUNY Binghamton, they discuss how social media helped and ruined everything, patient empathy and trust, the role of today's physician in "Burnout land," and when and if insurance will ever get it right. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The best way to describe Dr. Aditi U Joshi would be a "Telehealth Whisperer" who comes to the party with a storied history as an emergency medicine physician and former advisor to such juggernauts as the American Medical Association and Weight Watchers. The author of "Telehealth Success: How to Thrive in the New Age of Remote Care," Dr. Joshi takes us on a historical tour of the tools that underlie successful telehealth programs and practices and how everyone can implement them, including a hot take on where telehealth sometimes goes wrong and where it more likely goes right for companies, health systems, providers, and the ultimate end user, the patient. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

What do you get when you cross a professional wrestler, small business coffee company executive, nonprofit consultant, and rare cancer? Well, that would be the uniquely talented and inspiring unicorn that is Sean Wachter, who joined Matthew live in-studio for one hell of a conversation about how they're both somehow still alive. Well, that and much more, including a total 80s WWF throwback session to WrestleMania, a debate over Randy "Macho Man" Savage vs "Rowdy" Roddy Piper, and how Galaxy Quest got it right with "Never give up. Never surrender." Plus a healthy dose of nonprofit therapy and survivor guilt. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In the Spring of 2023, Matthew had the pleasure of speaking at an event hosted by Quest Analytics, a fabulous company whose mission has been to improve provider network management and help people across America receive the information and care they deserve. In today's episode, Quests's CEO, Steve Levin, joins Matthew to talk about what "access" really means and how the concept of "urban pre-planning" is getting reinvented at all cultural and socioeconomic levels to ensure those hypertargeted communities are provided with the tailored healthcare infrastructure they deserve. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Dr. Owen Muir is an Anna Freud National Centre for Children and Families-trained psychiatrist and official Mentalizing Treatment Supervisor. He is the coauthor of Adolescent Suicide and Self Injury: Mentalizing Theory and Treatment, a dual board-certified physician, with ABPN certification in general and child and adolescent psychiatry and a practicing physician in New York. But beyond the LinkedIn profile, he's a badass "inside baseball" advocate railing against the insurance industry for it's nonsensical malfeasance in the way it treats patients. His infamous newsletter, the "Frontier Psyciatrist's Substack" is appointment reading by anyone wishing to take an active role in fixing America's broken healthcare system. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Melissa Berry, aka The Cancer Fashionista, is a Stage 1 Triple Negative Breast Cancer. She is now the founder of Cancer Fashionista (a fashion, beauty, and lifestyle platform for the breast cancer community), the host of the "Dear Cancer, I'm Beautiful" podcast, and the board chair for the Triple Negative Breast Cancer Foundation. Today, she's a trusted leader, outspoken advocate, and notable influencer recognized for her outstanding support of women. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In today's episode, Matthew welcomes one of his nearest and dearest friends, Geralyn Lucas, whom he met in the earliest days of the nascent adolescent and young adult (AYA) cancer movement circa 2004. Geralyn, a storied American journalist and television producer, had only recently survived breast cancer and released the infamously notorious book, "Why I Wore Lipstick To My Mastectomy," which was adapted shortly after into a Lifetime television show soon after. As one of the first published authors who unapologetically interjected humor and snark into her story, Geralyn solidified herself as an authentic origin story influencer of AYA culture and paved the way for others to usher un a new era of patient empowerment and cancer survivorship. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In 2021, OffScrip Health produced The Cancer Mavericks: A History of Survivorship, an award-winning 8-part limited documentary series about the people and not the disease. So, if you're a narrative history podcast junkie, listen to Episode One of The Cancer Mavericks right here on the Out of Patients feed today. Learn how the Black Panthers became breast cancer advocates and how a $250,000 full-page ad in the NY Times shamed President Nixon into giving a damn about cancer. And how 50 years of social justice movements have brought us into today's conversations about healthcare, income inequality, and race relations. Apple Podcasts https://podcasts.apple.com/us/podcast/the-cancer-mavericks-a-history-of-survivorship/id1566467305 Spotify https://open.spotify.com/show/1Viodbe0rNxET08IyCiDmq AJGnPHsqDDO4xBsrc0cJ See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

We are hijacking today's episode of Out of Patients to bring you the pilot episode of "Cancer Coaster," a fresh new series from OffScrip Health focused on the many ups and downs of the emotional journey cancer patients, survivors, and caregivers face. For this particular pilot, we're focusing specifically on Chronic Lymphocytic Leukemia with our partner, The CLL Society, and their CEO — and special guest — Carly Boos. The average CLL patient has extreme highs and lows during their disease, from the lows of diagnosis, relapse, and the unknowns of watchful waiting to the highs of long-term stability and MRD negativity. See what Carly and OffScrip Health have in store for this groundbreaking series that will interview patients and their caregivers to talk about their emotions during their CLL journey, focusing on their feelings and where they went for support and resources. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-…

The SUNY Binghamton alumni network is rife with incredible humans who are changing the world one day at a time. On the show today, I'm proud to welcome Tom Heymann, President and CEO at Sepsis Alliance, the nation's leading infection prevention and Sepsis education and advocacy organization. While there may be obvious parallels between oncology and Sepsis (e.g., misdiagnosis, access to care, patient advocacy), the similarities end quite abruptly, as you'll hear on today's show. My only experience with Sepsis was when Tony Soprano got shot during Season Six, Episode Two of The Sopranos, "Join The Club." While I am grateful not to have dealt with a Sepsis diagnosis personally or in my family, Tom brought a Plus One in the form of Sepsis-survivor Bennett Kleinberg, who regains his comedy of terrors and how Sepsis Alliance became the support community he never knew he needed. Please enjoy a very serious show with a surprising sense of humor. See Privacy Policy at https://art1…